He finally started to pep up on Wednesday afternoon. Thursday afternoon he played with friends and did great, he was hurting when we got home and was guarding his tummy. He has had some greenish, snot consistency discharge around the tube insertion site along with some pink clear discharge, all which the nurse has said is normal as long as there is no odor to it or doesn't have a fever greater than 100.5 degrees. He is starting to drink well and is wanting to eat, so these are all good signs.
He still doesn't tolerate bolus feedings very well, so I always just hope he drinks his 16 ounces a day, so I don't have to bolus since he tends to throw them up (which to me is counterproductive).
He keeps pointing to his nose and saying tube. When we tell him it is gone and it is in his tummy now, he smiles. This in itself makes the decision for him to have surgery worth it, he almost acts like there is a weight taken off his shoulders. We are also teaching him that his PEG tube is his "button" and help him show friends so he doesn't feel like it is a bad thing. He is still sore and doesn't like me cleaning it, but it gets better every time.